G recovery. The video could educate order AMN107 stroke survivors and family and lessen their fears about what to expect. Survivors and CPs alike stated they were interested in participating in this video to talk about their own recovery issues as well as stress the importance of following the AHA guidelines: “We could make a video or something that we could show other people what to expect from a stroke and stuff. A video that you can hand out as a disc. A lot of people won’t be able to, or will not go to the Red Cross for information, but if they can just bring it home with them, it would be no excuse for not being able to understand.” (Respondent P2) Train/Use AA Men Who Have Been There to Help Deliver the Program–Along with the idea of using real stroke survivors and CPs in the video, there was consensus that they also should be used as peer educators in the intervention itself: “It takes another person that had a stroke to tell another person that you need to take your medication, to change your diet and make your doctor’s appointments.” (Respondent P1) It was further suggested that hearing stories or “testimony” from others who have had a stroke or TIA could help others in making the right healthy choices in stroke recovery and prevention: “Sitting down just like this and talking about things with people who also had a stroke or TIA, it helped me.” (Respondent 7) Healthcare SystemProvider Level Recommendations Table 3 shows themes, descriptive codes, and illustrative quotations emerging from r/ Healthcare System/Provider Level Recommendations. We classified these recommendations into the three categories that reflected the issues that the participants wanted addressed by healthcare systems and providers: a) Consolidate Medical Bills, b) Increase Provider Communication Skills, and c) Provide More Information about Stroke and AA Men. Consolidate Bills–The avalanche of post-stroke medical bills for the care some participants received was overwhelming to survivors and CPs alike. The participants wereget Pan-RAS-IN-1 Author Manuscript Author Manuscript Author Manuscript Author ManuscriptTop Stroke Rehabil. Author manuscript; available in PMC 2016 June 01.Blixen et al.Pagenot merely expressing frustration about the cost of health care, but that they envisioned a more streamlined, organized approach to billing as a way to help the overall stroke recovery process. Recommendations for hospitals and healthcare systems to address this issue were strongly suggested as can be seen in Table 3. Increase Provider Communication Skills–Previously cited provider barriers to stroke-related recovery and prevention by AA men and their CPs included providers use of difficult to understand medical terminology and perceived indifference to patients’ needs.16 Improving provider communication skills was strongly recommended: “You know there’s something that is going to have to be done about teaching doctors how to communicate with patients because we have to be on the same level, on the same playing field.” RespondentAuthor Manuscript Author Manuscript Author Manuscript Author ManuscriptProvide More Information about Stroke and AA Men Risk Factors: Except for what was shared in the focus groups, most of the participants knew little or nothing about the risk factors for a stroke: “I’m still trying to figure out exactly why I had a stroke in the first place!” (Respondent P7) and wanted their provider to “Sit down and talk to me like you’re doing now in this group.” (Respondent P5). Pro.G recovery. The video could educate stroke survivors and family and lessen their fears about what to expect. Survivors and CPs alike stated they were interested in participating in this video to talk about their own recovery issues as well as stress the importance of following the AHA guidelines: “We could make a video or something that we could show other people what to expect from a stroke and stuff. A video that you can hand out as a disc. A lot of people won’t be able to, or will not go to the Red Cross for information, but if they can just bring it home with them, it would be no excuse for not being able to understand.” (Respondent P2) Train/Use AA Men Who Have Been There to Help Deliver the Program–Along with the idea of using real stroke survivors and CPs in the video, there was consensus that they also should be used as peer educators in the intervention itself: “It takes another person that had a stroke to tell another person that you need to take your medication, to change your diet and make your doctor’s appointments.” (Respondent P1) It was further suggested that hearing stories or “testimony” from others who have had a stroke or TIA could help others in making the right healthy choices in stroke recovery and prevention: “Sitting down just like this and talking about things with people who also had a stroke or TIA, it helped me.” (Respondent 7) Healthcare SystemProvider Level Recommendations Table 3 shows themes, descriptive codes, and illustrative quotations emerging from r/ Healthcare System/Provider Level Recommendations. We classified these recommendations into the three categories that reflected the issues that the participants wanted addressed by healthcare systems and providers: a) Consolidate Medical Bills, b) Increase Provider Communication Skills, and c) Provide More Information about Stroke and AA Men. Consolidate Bills–The avalanche of post-stroke medical bills for the care some participants received was overwhelming to survivors and CPs alike. The participants wereAuthor Manuscript Author Manuscript Author Manuscript Author ManuscriptTop Stroke Rehabil. Author manuscript; available in PMC 2016 June 01.Blixen et al.Pagenot merely expressing frustration about the cost of health care, but that they envisioned a more streamlined, organized approach to billing as a way to help the overall stroke recovery process. Recommendations for hospitals and healthcare systems to address this issue were strongly suggested as can be seen in Table 3. Increase Provider Communication Skills–Previously cited provider barriers to stroke-related recovery and prevention by AA men and their CPs included providers use of difficult to understand medical terminology and perceived indifference to patients’ needs.16 Improving provider communication skills was strongly recommended: “You know there’s something that is going to have to be done about teaching doctors how to communicate with patients because we have to be on the same level, on the same playing field.” RespondentAuthor Manuscript Author Manuscript Author Manuscript Author ManuscriptProvide More Information about Stroke and AA Men Risk Factors: Except for what was shared in the focus groups, most of the participants knew little or nothing about the risk factors for a stroke: “I’m still trying to figure out exactly why I had a stroke in the first place!” (Respondent P7) and wanted their provider to “Sit down and talk to me like you’re doing now in this group.” (Respondent P5). Pro.
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